My Story

PLEASE SUPPORT ME IN RAISING FUNDS FOR KDUK

My name is Robert Rigby-Hall and I'm the co-founder of Beacon Global Group and Universal Access Bonds.  I've decided to run a half marathon to raise awareness as well as money for an amazing charity in the UK that was started by some great friends who are personally impacted by Kennedy's Disease.

By what I hear you say?  Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem. Although disorder predominantly affects males, it can only be passed on through female carriers of the gene. As the mutation is on the X chromosome, the disease affects males as they have only one X chromosome. For female carriers, it is possible that their sons may get the disease, and their daughters may become carriers. 

It is estimated that 1 in 40,000 people have this genetic defect and because it is relatively rare, Kennedy’s Disease is often initially misdiagnosed or goes undiagnosed for years. There is no cure for Kennedy’s disease and no current treatment available.

Dr Pietro Fratta and Prof Michael Hanna now run a Kennedy’s Disease clinic at the National Hospital for Neurology and Neurosurgery in London. Fundraising is absolutely critical to fund the ongoing research into Kennedy’s Disease.

I'm not the fittest but that's not going to stop me!!!! 

PLEASE SUPPORT ME IN RAISING FUNDS FOR KDUK. 

Thank you.