My Story

I am currently training to complete The Forest OF Dean Half Marathon on 29th September 2019 in aid of Kennedy’s Disease. It is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem.

My wonderful father and his brother have inherited this disease and I would like to support KDUK.com, a small charity who help fund UCL with their research to find a better understanding and possible cure of the rare hereditary disease. They are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers.  More is needed to help raise the awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.