Lianne Lees
My Story
Five beautiful friends and I will be taking part in the Heaton Park Glow Run. We will be doing this to raise money and awareness for Kennedy's Disease UK (KD-UK) - a charity close to my heart. KD-UK is the only charity in the UK for Kennedy's disease a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons with the spinal cord and brain stem.
My younger brother was diagnosed with this awful disease in 2006, and it has had a massive impact on him, his friends and our family. Not only does this terrible condition affect his muscles, but also mental health which erupted last year when he felt that the only option available to him was suicide. Thankfully he is still here.
Charity's such as KD-UK don't get the exposure they need that's why we wanted to do our bit by raising awareness and a little money so that KD-UK can keep on offering help and support to individuals and their families, and hopefully, one day find a cure.